Participate in fetal alcohol spectrum disorder research

Are you the carer of a child with FASD?

We need your help!

Researchers at the Child Health Research Centre are doing a study to assess health and well-being of children with fetal alcohol spectrum disorder (FASD). We are looking to gather information from caregivers who have children with FASD (aged 5-18 years).

The need for more research

Much research to date has investigated the impacts of prenatal alcohol exposure on the developing brain, but there has been very little research about how prenatal alcohol exposure affects the body in other ways.

Case studies in children with FASD have identified a range of anomalies including heart and kidney defects. Recently, at the 17th International FASD conference it was suggested that rather than describing FASD as a brain-based disorder, it should be described as a “whole-body” disorder”. Outcomes from an informal survey conducted in young adults with FASD in Canada suggests they experience a range of diseases including early onset arthritis and hypertension (i.e. high blood pressure).

We are also interested in learning about the needs of caregivers and families.

How you can help 

By completing our online survey. The survey will ask you some questions about your child’s health, some questions about your health as a caregiver and your family’s wellbeing.

With your help, our study hopes to fill in the gaps and learn more about how children have been impacted by prenatal alcohol exposure and the stressors that caregivers and families are facing. Ultimately, this will help to develop interventions to improve the health and well-being of individuals with FASD and their families.

At the end of the survey, if you live within driving distance of South Brisbane (where the Child Health Research Centre is located) you have the option to provide contact details to have your child complete some in-person health and wellbeing assessments. We can provide you with a summary of the results of these assessments and a $50 voucher to go towards reimbursing you for your time.

Who can be in the study?

We are seeking caregivers of children with FASD (aged 5-18 years), to be involved in our study.

 

Take the survey

Participants will complete an online survey (approx. 30 mins duration) that will ask you questions about your child’s past and current health.

Take the survey

Study information

For further information on the study (HREC/17/QRCH/272), click on the below links:

For further information on the study contact Dr Natasha Reid.

Email: n.reid1@uq.edu.au