Participate in fetal alcohol spectrum disorder research

Participate in vital research to help children with fetal alcohol spectrum disorder (FASD)

Are you the carer of a child with FASD? We need your help!

Researchers at the Child Health Research Centre are doing a study to assess health and well-being of children with fetal alcohol spectrum disorder (FASD). We are looking to gather information from Australian caregivers who have children with FASD (aged 5-18 years).

The need for more research
Much research to date has investigated the impacts of prenatal alcohol exposure on the developing brain, but there has been very little research about how prenatal alcohol exposure affects the body in other ways.

Case studies in children with FASD have identified a range of anomalies including heart and kidney defects. Recently, at the 17th International FASD conference it was suggested that rather than describing FASD as a brain-based disorder, it should be described as a “whole-body” disorder”. Outcomes from an informal survey conducted in young adults with FASD in Canada suggests they experience a range of diseases including early onset arthritis, and hypertension (i.e. high blood pressure).

How you can help 
With your help, our study hopes to fill in the gaps and learn more about how Australian children have been impacted by prenatal alcohol exposure. Ultimately, this will help to develop interventions to improve the health and well-being of individuals with FASD.

We are also interested in learning about the needs of caregivers to help us develop future effective supports for caregivers of children with FASD. So the online survey includes some questions about your child’s health and wellbeing and also some questions about caregiver’s health and well being.

At the end of the survey, there is also an option for those who live within driving distance of South Brisbane, where the Child Health Research Centre is located to provide contact details to have your child come in and complete some in-person health and wellbeing assessments. We can provide you with a summary of the results of these assessments and a $50 voucher to go towards reimbursing you for your time.

Who can be in the study?

We are seeking Australian caregivers of children with FASD (aged 5-18 years), to be involved in our study.

 

Take the survey

Participants will complete an online survey (approx. 30 mins duration) that will ask you questions about your child’s past and current health.

Take the survey

 

 

 

 

Study Information

For further information on the study (HREC/17/QRCH/272), click on the below links:

  • Flyers
  • Study Protocol