Seeking parents and carers of children with fetal alcohol spectrum disorder to study their health outcomes

Participate in vital research to help children with fetal alcohol spectrum disorder (FASD)

Are you the carer of a child with FASD? We need your help!

Researchers at the Child Health Research Centre are doing a study to assess health outcomes of children with fetal alcohol spectrum disorder (FASD). We are looking to gather information from Australian caregivers who have children with FASD (aged 5-18 years).

Much research to date has investigated the impacts of prenatal alcohol exposure on the developing brain, but there has been very little research about how prenatal alcohol exposure affects the body in other ways.

Case studies in children with FASD have identified a range of anomalies including heart and kidney defects. Recently, at the 17th International FASD conference it was suggested that rather than describing FASD as a brain-based disorder, it should be described as a “whole-body” disorder”. Outcomes from an informal survey conducted in young adults with FASD in Canada suggests they experience a range of diseases including early onset arthritis, and hypertension (i.e. high blood pressure).

With your help, our study hopes to fill in the gaps and learn more about how Australian children have been impacted by prenatal alcohol exposure. Ultimately, this will help to develop interventions to improve the health and wellbeing of individuals with FASD.

Who can be in the study?

We are seeking Australian caregivers of children with FASD (aged 5-18 years), to be involved in our study.

What is required of study participants?

Complete an online survey (approx. 30 mins duration) that will ask you questions about your child’s past and current health.

LINK to the survey here

 

 

Focus Groups for caregivers local to South Brisbane

Caregivers who live locally to South Brisbane may have the opportunity to participate in a range of non-invasive assessments of health and wellbeing (eg. Blood pressure, kidney ultrasound, body composition). Please advise Dr Reid if you are interested in being involved.

 

Consent forms, ethics, etc - let me know what else you need

Take the Study

Button link to go here when available